M ther
For my mother, it’s a life where she is not able to do anything by herself. A life spent in bed, just lying down. A life that exists only within the four walls of our small apartment.
To be able to fulfil my dream, I need lots of support; spiritually, financially and physically.
You can help us by :
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keeping us in your prayers
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helping at home
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sending us a donation
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buying medical supplies
We are very happy and blessed to have our new family of friends and well-wishers growing each day. People are cooking for us, cleaning, doing the shopping, doing massages, reading books for my mother, creating our website and much more. The list of ways on how to help is endless and the amazing people who visit still surprise us with the amount of ideas they have!
Become a part of our big international family!
Feel unique, happy and fulfilled!
Whilst being in this situation, I have realised how little is being done for people like me and my mother. Government support is really small and for carers there is almost no support at all.
As a life coach I want to help people who are dealing with a disease of a close one and to help them find themselves in their new life, just like I did. Currently, we are working on a project that will provide support for attendants and carers of the disabled. I want to make it huge, meaningful and real. If you want to join me, share this idea or, simply, ask for help, let me know here (button goes in here) and for updates, see our Facebook page. If you have any questions regarding us or the disease itself, please feel free to contact us. I will be happy to help.
Let’s make our lives easier and more harmonious together!
My dearest and beloved mother suffers from ALS; the disease you may know from the famous Ice Bucket Challenge campaign.
After long and very difficult 6 months spent in the ICU at the hospital, and despite the hardships and general opinion of the doctors that I would not manage to take care of her by myself, she is back home!
We are extremely happy to be together again!
It may seem devastating, and honestly sometimes it is.
But we are doing our best to find new aspects of life. We have found lots of love, care and we are mindful of each other. We are reconnecting with our old friends and making new friendships along our journey.
We have opened our hearts and home to amazing people who come and help in any possible way and who are supporting us through this difficult time. We are learning to cherish the happy moments; the moments that we are spending together, moments when we joke and smile to each other.
Despite this horrible disease, my mom is very calm and peaceful. She is taking everything so bravely. She wants to exercise with the physiotherapists and she tries to make her body move - even if it’s just one centimeter.
She is happy to be among people and she is not giving up.
I want to make the most out of the time that we have now. I want to give her a chance to live life to the fullest, despite the condition she is in. I want to use every moment - every second - that my mom is able and willing, to do something more than just lie down, think and suffer.
Mother, Mom, Mommy, Mama... What do you call the most important person in your life?
This is a story about my Mom, Ela.
In just 4 months, she went from a completely healthy and independent person to become totally dependent on others. From a young age, she was always able to do things by herself, on her own terms, but now that has changed. Now I am her hands, her voice and 24/7 attendant.
We are now learning to build a new life from the very beginning. It is a new life that is completely different from the one that we were used to.
For me, it’s a life spent inside. I only have the chance to leave the house for just 3 hours a week. It is a life with almost no privacy, an unsure future and tonnes of paper work that needs to be done as well as being constantly alert, busy and dedicated full-time to my mother.
India, October 2014
In October 2015, suddenly and cruelly, it took away her ability to move, walk, talk, breathe and eat.